Portrait no.25

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25 of 26 We were absolutely thrilled when pop and rock star Kim Wilde agreed to be photographed to support 26Miles4MND. Kim is married to a good friend of Miles, the actor Hal Fowler. Close mates at school, whilst Miles went into photography and television, Hal decided to take to the stage. It was when he played the part of Cousin Kevin in the stage show of the Who musical Tommy that he met Kim Wilde who was playing Tommy’s mother. That was in early 1996. Hal proposed to Kim in June and on September 1st the same year they were married. Hal’s West End credits include Alex in Aspects of Love, Billy Bigelow in Carousel, Javert in Les Miserables and Arnaud du Thil in Martin Guerre. He’s also acted in many TV dramas as well as appearing on the big screen, most recently in Solo: A Star Wars Story. Kim is obviously most famous for her hit 1981 single Kids In America but she’s also had seven other UK top ten singles. Many of you will know she has been busy touring this year promoting her new album “Here Come the Aliens” which has put her back in the UK album charts for the first time since 1993 reaching no.21! The 26Miles4MND photoshoot took place at Kim’s beautiful 16th century barn conversion in 2015. Little did Miles know at the start of the day that he’d be playing guitar with a rock and pop legend! Slide the picture to see Hal and Miles too. To donate to the MND Association – https://www.justgiving.com/fundraising/26miles4mnd

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To support the work of the MND Association, donate here – www.justgiving.com/fundraising/26miles4mnd

or text ‘mmnd99 £5.00‘ (or whatever you can afford) to 70070 

Thank you 🙂

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“keep on going like a Duracell battery”

Actress Gina Bellman whose mum has MND

Cristian and I have taken another 6 portraits which gets us very close to the final 26!

When we started the project Sarah Ezekiel (who you’ll remember from my last post) suggested we had to include actress Gina Bellman in our 26 Miles portraits. Gina became a household name in 1989 for her performance as the title role in Dennis Potter’s drama “Blackeyes”. She’s also well-known as Jane in the sitcom “Coupling” and for acting alongside James Nesbitt in the BBC drama Jekyll. Over in the States she has a huge fan following from her role as Sophie Devereaux on the TNT television series Leverage.

Gina’s mother has the rare primary lateral sclerosis variant of MND that I’ve been diagnosed with.

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Gina’s mum on a recent family outing

In a weird way getting Primary Lateral sclerosis (PLS) is equivalent to winning the MND lottery because it’s the rarest of the 4 or 5 different subtypes. The disease usually develops very slowly and is unlikely to cause us to die. PLS can develop into ALS but most patients lead long (but increasingly disabled) lives.

I’ve heard it said that some in the “MND community” say the lucky MND patients are the ones who go early. I really disagree and think that every person we have met in the 14 months doing this project would too.

Yes it’s rubbish being ill – Attempting to do the simplest of tasks now leaves me worn out for the rest of the day, I find it increasingly difficult to walk and have to use a scooter to get around. It makes me depressed if I let it BUT the damaged motor neurones causing my body to “not work” are not me! I’m still as stubborn and determined as I was 10 years ago. In fact I’m probably more so since developing MND.

Gina says something similar about her mum:

“In a way the MND makes her even more determined to be independent than if she was a perfectly healthy 81-year-old. None of us expected her to keep going like a Duracell battery…other people in my mum’s friend group have died of age related diseases but mum’s still going strong, being stubborn, being independent.”

Please click to go to our Just Giving page or text to donate so that the MND Association can help more of us stubborn MND patients remain independent. Text ‘mmnd99 £5.00‘ (or whatever you can afford) to 70070.

There will be more about Gina and her mum when we publish the portrait Cristian took of us in her lovely Kensington garden. That will be during the 26 days leading up to Cristian’s marathon run.

For the time being here are some snaps “behind the scenes” of the shoot.

(Click on the first photo to view in a lightbox)

 

A resurrected friendship

Just before Easter I spent the weekend with an old friend of mine who’s supporting the 26 Miles 4 MND project. He happens to be a successful actor these days, and the husband of Kim Wilde.

Here’s a picture of Hal and I relaxing in the jacuzzi that’s in their back yard –

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“Cheers”

Hal Fowler was my best mate during our teenage school years. At the time our lives felt very creative, quite chaotic and we enjoyed breaking the rules. In truth though it was all fairly innocent and we never actually went too far: We ended up in hospital just once due to too much “high spirits” and although we had a few encounters with the police, we were never actually arrested!

The best months were the ones we had off school to revise for our “O” and “A” levels. Not much revision got done – They were sunny summers and we spent most of the time getting pissed, pushing boundaries and pulling girls. Needless to say Hal and I both ended up “qualification challenged”, though in our individual ways that hasn’t held either of us back in life.

To be honest it was mostly Hal who did the pulling girls. He seemed to have the knack. It was a knack that continued after school, through his time at drama college and then onto the West End stage. Whilst acting in The Who’s musical Tommy, Hal “pulled” Kim Wilde. At that precise moment his pulling career ended. They fell in love and the rest, as they say, is history.

picking up where we left off

Apart from going to each others weddings, there was little contact between Hal and I in 27 years. Then I sent Hal a text about the “26 Miles” project raising money for the MND Association and he agreed to get involved. It’s resurrected our friendship which happily these days is a bit less hedonistic.

Hal regularly appears on stage, TV and the big screen. He’s acted in West End musicals and is currently playing Cheshire Cat in wonder.land at the National Theatre.

Years before Hal’s professional performing career we’d perform together in our home city of Oxford – busking – I’d sing and play guitar, Hal would sing and accompany on his double bass. We were good at it too! We’d get there and back in a battered Citroen 2 CV with the neck of Hal’s bass sticking through the open sun roof. All of the money was spent in the pub later. Fun times!

There are no pictures of us in that 2 CV, but here are some behind the scenes shots from the morning Cristian and I spent at Hal and Kim’s taking their 26 Miles portraits. We resurrected our busking duo for the day – I think you can see that we still have “it”… whatever “it” is….

(Click on the first picture to enter the gallery)

Cristian and I are having fun on our “26 Miles” journey and we hope you enjoy following us on this blog, but the reason we are doing it is deadly serious. We are trying to raise £2,600.00, or more, for the Motor Neurone Disease Association – the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

Click HERE for the background to our money raising campaign.

MND is a terrifyingly cruel disease that can leave people locked in a failing body, unable to move, talk, swallow and eventually breathe. It kills a third of people within a year and more than half within two years of diagnosis.

If you’d like to help us achieve our goal here is the link to our donation page or you can donate via your mobile phone – Text ‘mmnd99 £5.00‘ (or whatever you can afford) to 70070 

Thanks so much for reading 🙂

Getting quite excited now…you could say Wilde even…

Tomorrow we will be photographing Kim Wilde and her husband the actor Hal Fowler for 2 more of our 26 Miles celebrity portraits. Can’t wait to see her and my old mate Hal again.

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Kim Wilde singing Kids In America in 1981

http://www.kimwilde.com/

After that we’ll be interviewing and photographing Sarah Ezekiel for another of our 26 MND portraits. We are slowly but surely getting closer to our target (and nearer to Cristian having to run 26 miles – the poor git!).
Here’s a link to Sarah’s website. She creates amzing art using Eye Gaze technology. Well worth a look if you are already thinking about Christmas –
http://sarahezekiel.com/#/eyegaze-art/4562566580

Stories and photos will be on here soon 🙂

Wilde about “26 Miles”

We’re very excited to say that in a few days time we will be taking Kim Wilde’s portrait as one of our celebrity supporter photos.

I can’t wait to see her again with her husband the actor and singer Hal Fowler who was my best mate at school!

Click here for some 1980’s cool – The official “Kids In America” video.

You can donate to “26 Miles 4 MND” via your mobile phone! – Text ‘mmnd99 £5.00‘ to 70070

Or Click here for the “26 Miles” Just Giving page. Any amount, however large or small, will be greatly appreciated. 

 🙂