Portrait no.21

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21 of 26 Jay Parker had been in his job as social media officer for the MND Association for five months when we interviewed him at their HQ, David Niven House in 2015. “MND ranks quite highly on the cruelty scale. It seems like torture to me. I couldn’t imagine having it. It has scared me and it makes me want to do things sooner in life rather than later just in case there’s something awful lurking round the corner. Since starting here I’ve seen lots of documentaries and things like that about people who have lived a normal life, quite happy then suddenly were just struck down with MND and it destroyed their lives. So yeah, it’s high up there for a terrible disease. In my job in social media we can measure success in numbers. Since the Ice Bucket Challenge the likes on Facebook and followers on Twitter have more than doubled. My goal would be to keep raising that awareness. Making sure people know what MND is. In fact I’m even doing that in my own family. I’ve only been here five months but I’ve fed back everything I’m learning in this job straight to my family – My sister and mum and dad. They’d not heard of MND either but now they feel exactly the same way as me. They all think it’s absolutely horrible.” To help the MND Association donate using this URL https://www.justgiving.com/fundraising/26miles4mnd

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To support the work of the MND Association, donate here – www.justgiving.com/fundraising/26miles4mnd

or text ‘mmnd99 £5.00‘ (or whatever you can afford) to 70070 

Thank you 🙂

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